PT and Pump Refill

 Yesterday Elijah had a great day! He started the morning with his favorite PT, Chad. He did an awesome job working so hard! He has come so far and I love being able to watch how much stronger he gets every day. Later, we took a quick trip to the store to get a few things and Elijah was very vocal throughout the time we were away. One thing that I struggle with is making sure I take care of myself, including remembering to eat. I often get so caught up in the busy of the day that I don't take the time to do the basic things that I need to. So, my mom and I were talking about some snacks we used to buy but they are so expensive and don't fully meet the needs we wanted. We decided to buy containers and make them ourselves. We ran out of time yesterday to get them prepped but I know we will today. I am excited to have some quick grab options that are healthy options and not junk. We then went to see Elijah's rehab doctor to have his baclofen pump refilled. He always takes the big poke like a champ! The rehab team is so great with him and are very happy with where he is right now. So am I. For a while there, his pain from dystonia was out of control and his seizures had ramped up. With a few med tweaks and a diet change, he is a different kid! I am so happy! We were able to go on a nice walk in the evening after dinner and even ran into some friends. I am loving the time I have with my mom right now. She is great about keeping me moving and on task, plus I just love spending time together. Elijah loves having Nana here too and has been giving her lots of big smiles. 




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