Posts

Learning to Drive

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 One awesome thing we have going on right now is the opportunity to get Elijah a power wheelchair. Not just any power wheelchair. This one can stand! Thats right, he can get up to eye level! I cannot wait for that hug!!! With the home we are moving into having an open floor plan, I would love him to have the opportunity to get himself around and be able to join us in many activities. I could picture making food (baking or cooking) and Elijah standing in his chair helping stir. I picture going on walks around the neighborhood and Elijah not having to sit the whole time. What I didn't know is that Elijah has to prove that he can work a power wheelchair before Medicaid will approve it. How can he prove he knows how to work it if he has never gotten the chance to. Luckily, we have had an amazing DME company that has intermittently allowed us to borrow a power chair similar to what we are looking at. Yesterday, Elijah's PT and I took him to the driveway and let him loose! He is so f...

Time To Let It Go

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 Good morning! I was looking at some statistics this morning and I don't even know that it feels like a high enough number. The average person spends almost 2.5 hours on social media per day! After more looking, the average person spends up to 5 hours on their phone per day in some capacity and the newer generation is over 6 hours! Thats more than half the day! I know in my house, it feels like my teenage daughter is on it all day in some form or fashion. I find myself picking up my phone all the time without a true need. It is a huge distraction from what is important. I have tried to keep myself off of social media many times but I always find myself going back to it. I want to experience what others do where they find themselves impacting others with their stories and videos. I want Elijah's story to impact others and when the likes or comments lack, I get defeated. Its disgusting. I don't want to be that person. I don't want to find my worth in what others think of ...

Let's Catch Up!

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 Wow how time flies!  Keto did not work out for Elijah, at all. That dang keto flu just did not want to go away and the joy in Elijah was just gone. So we said goodbye to Keto and made the decision to go back to a formula that had been used in the past that he did well on. He almost immediately perked back up and has been his best self! I love seeing that smile!!!  So many things have happened over the last few months. Plenty of travel back and forth to Texas for doctors appointments. Visits from his biological grandma. Baseball games. Sitting like a big kid at the kitchen table! We traveled to New Mexico for my nephews graduation from high school and got to take Elijah out on a boat! I was a nervous momma but he had fun. We have had friends come in and out of our lives. My childhood best friend got to come and meet the kids for the first time! We let him try lemon meringue pie and he absolutely loved it! It has been a whirlwind of adventure but so fun!  We have been...

Keto Flu :-(

 So this past week, Elijah transitioned completely over to a full keto diet. Day 2, we started noticing he was very fatigued. He has not been himself most of the week. Very tired and just out of it. I did talk to the dietician and was told to give him little amounts of juice twice a day to help him if I needed to. Last night, we were laying in bed and he was just staring at me. I stared back and he started making sounds like he was talking to me. I mimicked these sounds back to him and I got his big smile. I started telling him how much I loved him and continued to get his big amazing smile. I have been struggling all week with questioning if I have made the right decisions for him. We were told how this diet could really help his seizures get under better control and overall quality of life could improve. I always want this for him so I felt I had to try it. They warned me it would be hard at first and encouraged me to give it a full 3 months unless we are not seeing an improvemen...

PT and Pump Refill

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 Yesterday Elijah had a great day! He started the morning with his favorite PT, Chad. He did an awesome job working so hard! He has come so far and I love being able to watch how much stronger he gets every day. Later, we took a quick trip to the store to get a few things and Elijah was very vocal throughout the time we were away. One thing that I struggle with is making sure I take care of myself, including remembering to eat. I often get so caught up in the busy of the day that I don't take the time to do the basic things that I need to. So, my mom and I were talking about some snacks we used to buy but they are so expensive and don't fully meet the needs we wanted. We decided to buy containers and make them ourselves. We ran out of time yesterday to get them prepped but I know we will today. I am excited to have some quick grab options that are healthy options and not junk. We then went to see Elijah's rehab doctor to have his baclofen pump refilled. He always takes the ...

Mother's Day

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  I hope that everyone enjoyed their Mother's Day! I know I did! My daughter worked so hard to create this for me and I absolutely love it! I am so proud of her! I am so blessed. I started the day thanking Elijah for making me a momma! Then my mom, my daughter, and I were blessed with a homemade brunch from my hubby. Waffles, fruit, and bacon! YUM! Followed brunch with a walk around the neighborhood with my mom and Elijah. What a beautiful day! Later that day, we got to go to the nail salon and enjoy pedicures. My daughter had never had one before so it was so fun to watch her enjoy it. We discussed that it will have to be a monthly outing for us. Overall, it was a great day and I love that I got to spend it with my mom! We realized that we actually did Mother's Day together last year too at a baseball game.  Still going strong without social media and for some reason it has been a little harder than easier. However, I know that I have been so much happier without it so I will...

We Are Back!

 Good morning and Happy Mother's Day!  I have been doing a lot of reflection lately. I have found, like so many do, that a lot of time gets consumed by things that don't matter. Especially, I have noticed the hold that social media had on me. I would look at it first thing in the morning when I woke up. I would have to check it all the time during the day and get lost in the endless scrolling. I would have to scroll while watching my favorite shows, while caring for Elijah, and definitely before going to sleep. I would even find myself doing it on the nights I was struggling to sleep. I then started to notice the toll it was taking on my mental health. Those who know me best, know that I am a major people pleaser. I do not like to hurt peoples feelings and tend to let myself be walked all over. I found myself trying so hard to be apart of certain groups in town that I knew would end up hurting my feelings. I thought it was what was best for Elijah so I kept putting myself out ...